A Beginning

Living with an autoimmune disease is a challenge. It also, almost always guarantees that you will have at least one more. Those of us that are living with these challenges are much more likely to suffer from depression. One thing I have learned is that I have to be gentle with myself.  My life change so dramatically, not to mention so quickly.  Where I had always been strong and able to adapt, now I was in so much pain I was forced to move slowly or not all. My thoughts were a haze. All the things I had taken for granted, just good health was now gone. It was so overwhelming! I had almost always worked two jobs, now I could no longer work and I had a small child to raise. I had to learn to take everything one step at a time.

When I first moved to Ohio it felt like my body had betrayed me. I was suddenly in such dramatic pain. If I had been able to leave my body behind in order to get away from it, I would have. Ten years down the road I can tell I now have a much deeper appreciation of the gradations of pain. As you know by now, I was born in Sothern California and although I had moved around a lot living in Texas and Arizona as well, I had always lived in desert areas. In moving to Ohio, I had to deal with the humidity and extreme cold in the winters. I also had to deal with the diagnosis of having Psoriatic Arthritis and Fibromyoma. My bone scan showed that I had had this condition since I was a teen and just never known. By the time I was sent to a Rheumatologist and had a bone scan done. I had the bone density of the average ninety-year-old woman, at the time I was forty.

In moving to Ohio, I had to deal with the humidity and extreme cold in the winters, something Id never had to deal with before. I also had to deal with the diagnosis of having Psoriatic Arthritis and Fibromyoma. My bone scan showed that I had had this condition since I was a teen and just never known. By the time I was sent to a Rheumatologist and had a bone scan done. I had the bone density of the average ninety-year-old woman, at the time I was forty.

That was ten years ago, I’m still in Ohio. My family, for the most part, is here. I go back to Ca and visit family and friends as often as I can (rarely) and my health is so much better there. All it takes is money, something you really don’t get on disability. You can, however, live a good life.  There are many sites that will help you save money.